Friday, August 03, 2012

Trisomy 13 & 18: "Our children are not a diagnosis"

Baby being held with label Respect Life
Keith Barrington, a Montreal neonatologist, comments on a study conducted on parents of children diagnosted with Trisomy 13 & 18. These children were not terminated, but allowed to be born:

What is most distressing is how negative the families’ interactions with health care providers were. Although 2/3 of the families did meet at least one provider who was helpful; most had received misinformation, and many of those who chose to have active care felt that they were judged negatively by providers for daring to make that decision. Providers also often referred to their baby in de-humanising terms, calling their baby ‘it’ or ‘a T18′. They recount interactions with providers who never learnt their baby’s name, instead referring to the child by their diagnosis.